Your birthday is approaching, but you knew that. I had almost forgotten but then I realized it today. My mood is always darker and more difficult around this time. Sometimes I don’t even have to know the time is coming, the mood strikes and I try to figure out why and then I realize.
You’d be 20 this year. Questions fly through my mind like a whirlwind of pain and confusion. What would you be like? What would your boyfriend or girlfriend be like? Would you be going to college? Would all our lives be drastically different?
I miss you with every piece of me. Sometimes I think of your laugh or your smile and it fills
me with love and joy. Sometimes the gift of knowing you at all is enough. And then other times I am filled with a pain that is indescribable. There is a hole left in me, an emptiness that simply cannot be explained to someone who has not lost a child.
me with love and joy. Sometimes the gift of knowing you at all is enough. And then other times I am filled with a pain that is indescribable. There is a hole left in me, an emptiness that simply cannot be explained to someone who has not lost a child.
Our lives are better just because you were in them even for a short time, but you’d be 20 this year and somehow I feel so very robbed by not being able to share that with you.

When you first become ‘disabled’ it is a difficult adjustment. Learning your limits, knowing what you can and cannot do or eat or tolerate. Accepting that life has changed in some significant way.
Forgive me if some days I’m whiny or complaining. I’m simply tired and beat down at the moment. Forgive me if I’m not that positive light at the moment, for I am simply in pain in all aspects of my self. Remember who I truly am and will be again and just be patient while I find my way through the physical pain that has been added to me and that I am realizing might be a part of me. Sometimes accepting what you have been dealt can be a huge help in living your life with joy. I was there and once I accept this new stuff I will be again. Acceptance doesn’t mean I give up or that I’m not going to try to find ways to alleviate the pain and illness but without acceptance I cannot even get there.





I’ve been thinking a LOT lately about the meaning of life and our journey here. Maybe not so much the meaning but the journey itself.
So the next time you are bored and wondering what the hell is wrong with your life, STOP! Take that moment to create something amazing to hang onto or for someone else to hang on to. Create a special moment. Make someone you love feel completely as special as they are to you. Shine the sun of love upon them and watch the flowers of a new memory bloom all around.